Sandra K Russell Derby Day Benefit for MitoAction
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If this is a recurring event that will be happening again this year, please let us know.
If this is a recurring event that will be happening again this year, please let us know.
| Dates: | Sat from 5/5/18 - 5/5/18 |
| Hours: | Doors open at 4:30 p.m. |
| Ages: | Adults |
| In/Outdoor: | Indoor |
| Cost: | $$ see below |
| Category: | Fundraisers |
“MitoAction’s Derby Day Benefit is a night of fun that allows the community to come together to make a difference in the lives of families faced with the challenges of this rare disease,” said Kira Mann, Chief Executive Officer of MitoAction.
This high-energy fundraiser supports all of the programs and resources that MitoAction offers free of charge to the mitochondrial disease community, including sending diagnosed children to summer camp.
Mitochondrial disease is a rare, chronic genetic disease that can be present at birth or develop later in life.
Targeting the energy producing body systems, mitochondrial disease causes debilitating physical, developmental, and cognitive disabilities.
Symptoms may include: poor growth, loss of muscle coordination, muscle weakness and pain, seizures, vision and/or hearing loss, gastrointestinal issues, learning disabilities, and heart, liver, or kidney failure.
Approximately 1 in 4,000 people lives with mitochondrial disease, which is progressive and has no cure.
The Derby Day Benefit was created in honor of a woman who knew the importance of helping others and who loved to celebrate the Kentucky Derby.
Sandra K. Russell and her husband, MitoAction board member Gordon Russell, hosted an annual Kentucky Derby party in their home in Wellesley, MA, before she lost her battle with mitochondrial disease.
MitoAction wanted to ensure that Sandra's legacy of giving continued and that families knew they would never be alone on this journey.
“Please join us as we help improve the quality of life for our patients and their families,” Mann said.
For a night of fun for a great cause, visit this link to register: www.mitoaction.org/derbyday
Then don your big hats or outrageous bow ties and your finest Derby attire and get ready to party!
MitoAction is a Boston based nonprofit organization dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
For more information, please visit www.mitoaction.org or email [email protected].
| COST | ↑ top |
$135/$150
| WEBSITE | ↑ top |
| LOCATION | ↑ top |
539 Tremont Street, Boston, MA, 02205-____ map
Royale, 297 Tremont Street, Boston, MA.
| RELATED LINKS | ↑ top |
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